About Amyloidosis Research Consortium

The Amyloidosis Research Consortium (ARC) is a 501c(3) nonprofit organization founded in 2015, harnessing the power of collaboration and innovation to advance science and both improve and extend the lives of those with Amyloidosis. We are dedicated to transforming the way research is being done and focus on what will have the most significant impact on improving the lives of amyloidosis patients. We forge collaborations across industry, research, clinical care, and regulatory to address unmet needs and accelerate the discovery of new treatments. ARC empowers and supports patients by ensuring they have access to the best quality care and information.

To learn more about ARC, visit http://www.arci.org.

About the Position

The Director of Development will lead ARC’s fundraising efforts to support its mission, with primary responsibility for achieving financial goals. This role focuses on securing and expanding relationships with individual, corporate, and institutional donors through a variety of methods, including direct cultivation, online campaigns, events, and grant proposals. The Director will work closely with the CEO and senior leadership to drive revenue growth and raise ARC’s visibility within the amyloidosis community.

In addition to overseeing annual, major, and planned giving programs, the Director will focus on building and strengthening donor relationships with community members, patients, their friends, families, foundations and relevant organizations. The individual will also collaborate with the Director of Strategic Partnerships and Business Development to increase corporate and institutional support through grants and other funding initiatives. The ideal candidate will bring a strategic, hands-on approach to donor development and team leadership, ensuring fundraising efforts consistently exceed financial targets and align with ARC’s long-term mission.

This full-time, exempt position offers an exciting opportunity to make a significant impact within a fast-paced, mission-driven organization. The Director must be deeply committed to ARC’s mission, inspiring innovation, leading a dynamic team, and contributing to the growth of ARC’s donor base.

Responsibilities

Development Leadership:

• Lead the development and fundraising efforts for ARC by identifying, cultivating, and stewarding a portfolio of individual, corporate, and foundation donors.
• Develop and execute strategies for major gifts, annual campaigns, planned giving, and special initiatives to meet and exceed revenue goals.
• Oversee the creation and execution of fundraising events, from annual campaigns to special donor recognition and stewardship activities.
• Supervise the development team, providing leadership, mentoring, and strategic direction to maximize team outcomes and staff growth.
• Collaborate with the CEO and senior leadership to define and drive ARC’s fundraising priorities and organizational goals.
• Leverage relationships with Board members, senior staff, and volunteers to support fundraising activities and engage them in the solicitation process.

Donor Engagement and Fundraising:

• Work with the Development team and other departments to create and implement strategies for increasing donor engagement and meeting fundraising goals through annual campaigns, matching gifts, and peer-to-peer fundraising.
• Expand ARC’s legacy and endowment giving, focusing on long-term growth strategy
• Manage relationships with major donors and corporate partners, ensuring regular communication, updates on ARC programs, and meaningful recognition.
• Develop proposals, grant applications, and other fundraising materials in collaboration with the CEO and senior leadership team.

Communications and Materials Development for Fundraing:

• Develop and oversee the creation of all communications and materials specifically for fundraising purposes, including donor appeals, case statements, impact reports, fundraising event materials, and donor recognition content.
• Ensure that all development materials effectively communicate ARC’s mission, programmatic impact, and the importance of donor support in a compelling and clear manner.
• Collaborate with the Marketing and Communications Manager and senior leadership to craft engaging donor-focused narratives that highlight the work of ARC and its impact on the amyloidosis community.
• Ensure timely and appropriate distribution of fundraising materials to donors and prospects, including through digital channels, direct mail, and in-person meetings.
• Develop and manage content for donor stewardship communications, including thank-you letters, donor newsletters, and annual reports, to maintain strong relationships with current and prospective donors.

Strategic Oversight and Reporting:

• Prepare detailed reports on fundraising progress and revenue forecasting for the CEO, Board, and senior leadership team.
• Provide recommendations for optimizing donor portfolio management, fundraising strategies, and team performance.
• Ensure fundraising goals are met in a timely manner and within budget, regularly assessing and adjusting strategies as necessary.

Operational and Database Management:

• Use Salesforce to track donor activity, generate reports, and manage donor relationships.
• Oversee the development and maintenance of a comprehensive donor database, ensuring accurate tracking of donations, pledges, and timely communications.
• Ensure systems and processes are in place to support ARC’s growing fundraising goals, including tracking donations, managing donor accounts, and integrating new technologies as necessary.

Skills and Experience

• Bachelor’s Degree with 10+ years, or a Master's degree with 7+ years of progressive experience in fundraising, donor relations, and nonprofit development, with at least 5 years in a leadership role. Proven expertise in department management, institutional and annual giving campaign oversight, and donor relationship/account management.
• A demonstrated track record of success in raising funds by expanding the donor base and directly cultivating and soliciting major donors.
• Strong experience in individual giving, corporate partnerships, and strategic fundraising initiatives is essential.
• Strong written and verbal communication skills, with the ability to craft compelling donor communications, proposals, and reports.
• Strong knowledge of fundraising tools and best practices, including grant writing and corporate sponsorship solicitation.
• Proven experience in strategic planning, project management, and team leadership.
• Excellent relationship-building skills, with a collaborative and inclusive approach to leadership.
• Expertise in using Salesforce or similar CRM systems for donor management and tracking.
• Experience with budget management, fundraising forecasting, and performance metrics.
• Familiarity with health-related or rare disease organizations.
• Strong problem-solving skills and the ability to manage multiple priorities in a fast-paced environment.
• Creative and strategic thinker with a passion for ARC’s mission and vision.
• Compassionate, flexible, collaborative work style; a sense of humor is a plus.
• Experience utilizing MS Office, Salesforce, project management tools such as Wrike, Smartsheet, or Microsoft Project, and document management systems such as Box.

This is an exciting opportunity to work at a growing organization, with a team that values a diversity of experience and demonstrates an unwavering commitment to the amyloidosis community.

How to Apply

Applications will be reviewed on a rolling basis. To apply, please visit https://arci.org/about-arc/careers/.

When submitting your application, please include both your resume and a cover letter. We kindly ask that your cover letter be written in your own words, without the use of artificial intelligence (AI), as we value hearing your unique voice and perspective.

Additionally, let us know where you came across this job posting.

Thank you for your interest in joining our team—we look forward to reviewing your application!

Equal Employment Opportunity

We are proud to be an equal opportunity employer and are committed to fostering an inclusive workplace. We celebrate the diverse backgrounds of our employees and do not discriminate based on race, color, religion, gender, sexual orientation, gender identity, national origin, age, disability, or veteran status.

Additional Information

Remote Work Opportunity - Work Schedule & Expectations:

This is a full-time, exempt position requiring 40 hours per week. The role is fully remote, with standard working hours from Monday to Friday, 9:00 AM to 5:00 PM Eastern Time, to ensure effective collaboration with the team. Occasional travel may be required for meetings and events.

Comprehensive Benefits Package:

At ARC, we prioritize the well-being and work-life balance of our employees. Our benefits package is designed to support both personal and professional growth. Key benefits include:

• Paid Time Off (PTO): 4 weeks of vacation time, 40 hours of sick leave, 10 holidays, and 2 floating holidays. Additionally, we offer PTO-Free Days during the extended holiday break from Christmas to New Year’s Day.
• Medical, Dental, Vision Insurance: Employees have access to comprehensive contributory health plans from day one, with no waiting period. ARC covers 65% of individual and family medical and dental insurance premiums.
• Life and Disability Insurance: 100% employer-paid Life and AD&D coverage, along with Short-Term and Long-Term Disability insurance.
• Flexible Spending Accounts (FSA): Options for both Health and Dependent Care FSAs.
• 401(k) Retirement Plan: Up to a 4% employer match to support your financial future.
• Additional Benefits: Employee Assistance Program (EAP), Worker’s Compensation, and other resources to support your well-being.