About Amyloidosis Research Consortium
The Amyloidosis Research Consortium (ARC) is a 501c(3) nonprofit organization founded in 2015, harnessing the power of collaboration and innovation to advance science and both improve and extend the lives of those with Amyloidosis. We are dedicated to transforming the way research is being done and focus on what will have the most significant impact on improving the lives of amyloidosis patients. We forge collaborations across industry, research, clinical care, and regulatory to address unmet needs and accelerate the discovery of new treatments. ARC empowers and supports patients by ensuring they have access to the best quality care and information.
Amyloidosis is the term for a group of rare diseases in which an abnormal protein misfolds and deposits as amyloid in organs and tissues, causing damage and, eventually, organ failure. There are different types of Amyloidosis, and they vary from one another in their biochemical nature and natural history. Some are acquired, and others are inherited. In the United States, approximately 4,000 people develop Amyloidosis each year. It is currently recognized to be wildly underdiagnosed, and therefore that number is expected to rise significantly.
About the Position
Are you looking for a meaningful role? Interested in working with a motivated, thoughtful, creative, and friendly team to make a difference? ARC seeks a full-time Senior Program Manager to support the ASPIRE: Amyloidosis Industry Collaborative and additional cross-stakeholder collaborations, as defined by the Director of Strategic Programs, Engagement, and Communications.
ASPIRE is made up of a group of leading life sciences companies that ARC has brought together to work in a pre-competitive space to address some of the most urgent issues faced by the amyloidosis community. Resources for rare diseases like amyloidosis are limited, and significant unmet needs persist. Through collaborative approaches, available resources are leveraged to drive efficiency, reduce redundant efforts in critical areas, and accelerate meaningful progress. By bringing together expertise and facilitating strategic partnerships across member groups, ASPIRE aims to accelerate progress in the areas of diagnosis, care, and addressing health disparities in amyloidosis through projects that are designed and implemented collaboratively, arriving at solutions that address shared challenges and unmet needs. To learn more about ASPIRE, visit: www.arci.org/aspire/
The Senior Program Manager, reporting to the Director of Strategic Programs Engagement and Communications will be ultimately responsible for project outcomes and success across ASPIRE working groups. This will require generating comprehensive project plans, identifying obstacles, developing strategies to address barriers, and rapidly escalating challenges and proposed solutions. Driving projects forward and maintaining momentum across working groups is critical to the role. The Senior Program Manager must be able to build group consensus and clearly communicate across stakeholders when project plans need to be adjusted or adapted.
The Senior Program Manager will be responsible for working with ARC’s Project Coordinator to ensure successful project management, providing logistical, and administrative support to multiple project-specific working groups, updating project plans and project management tools, coordinating member convening events, and communicating diplomatically across stakeholders.
Responsibilities
The Senior Program Manager will be responsible for developing project plans, timelines, budgets, and step-wise action plans to get multiple projects up and running, continuously on target, and successfully completed. The Senior Program Manager is ultimately responsible for working group outcomes and ASPIRE’s ongoing success.
- Manages multiple projects and associated working groups.
- Translates project concepts into timeline- and deliverable-bound project plans in collaboration with ARC staff and subject matter experts.
- Develop tactical deliverables such as publication plans, studies, and knowledge-sharing activities. Providing ongoing visibility of plans and activities to all relevant stakeholders
- Hosts project-level meetings by preparing materials (agenda, slides), moderating discussions, completing meeting follow-ups (minutes), and tracking action items between meetings.
- Updates project management tools that track project-level milestones and timelines against committed resources and project budgets.
- Develops project budgets and manages financial tracking and reporting.
- Supports the development of scheduled and ad hoc project reports, in addition to supporting manuscript development and other communications, as needed.
- Timely management and organization of documents and notes across working groups in ARC’s shared storage platform
- Manage relationships with multiple external vendors working on key project deliverables.
- Ability to assess opportunities for synergy across programs of work and develop processes that may be replicated.
- Collaborates with ARC staff members on communication efforts, including providing website and social media content, and developing quarterly reports for ARC’s Board of Directors.
- Communicates ASPIRE progress regularly with internal staff in all-staff and internal stakeholder meetings.
- Stays up to date on news, advancements, and needs in amyloidosis diseases as guided by senior ARC leadership.
- Leads background research efforts and presents materials clearly to the leadership team.
- Manages and coordinates all logistics for in-person and virtual ASPIRE meetings.
- Ensures agreements, memberships, contacts, and all administrative elements are current and up to date.
- Assumes other duties and responsibilities, as needed, that are appropriate to the position.
Skills and Experience:
- Experience and demonstrated ability to balance and manage multiple priorities, projects, and deadlines; ownership of the work and outcomes.
- Highly organized, very detail-oriented, proactive, and takes initiative. Ability to perform and prioritize multiple tasks, exercise good judgment, and quickly identify and resolve problems.
- Comfortable balancing project and program priorities, triaging and escalating internally as needed as new information emerges that may impact timelines and stakeholder expectations.
- Ability to work independently and collaboratively as part of a team within a dynamic work environment that includes virtual teams.
- Strong interpersonal skills and the ability to build relationships with internal staff, external experts, and other stakeholders.
- Ability to represent the organization, in written and verbal formats, to senior leaders in industry and government in a professional manner.
- Demonstrated experience with communicating science to different audiences and through different media, including websites, emails, presentations, and publications.
- Commitment to professional development and continued learning within an organization.
- Passion for non-profits, health equity, patient engagement, and cross-sector collaboration. Ability to be flexible, compassionate, and creative, while having a sense of humor.
- Experience utilizing MS Office, Salesforce, project management tools such as Wrike, Smartsheet, or Microsoft Project, and document management systems such as Box.
- Bachelor’s Degree with 3-5+ years of experience and/or master’s degree with equivalent experience, preferably in research, public health, rare disease, and/or life science industries.
This is an exciting opportunity to work at a growing organization, with a team that values a diversity of experience and demonstrates an unwavering commitment to the amyloidosis community.
Equal Employment Opportunity
We are proud to be an equal opportunity employer – and celebrate our employees’ differences, regardless of race, color, religion, gender, sexual orientation, gender identity, national origin, age, disability, or Veteran status.
Additional Information
Remote Work Opportunity - Work Schedule & Expectations:
- Seize a fully remote experience with this dynamic full-time, exempt position requiring 40 hours per week.
- Embrace the flexibility of working from the comfort of your home, Monday to Friday, 9 am to 5 pm Eastern Time, fostering seamless collaboration with the rest of the team.
- Anticipate occasional travel for exciting events and meetings, adding a dynamic element to your remote work journey.
Comprehensive Benefits Package:
At ARC, we prioritize the well-being and work-life balance of our team members, offering a comprehensive benefits package designed to support our employees’ overall health and future goals. Here's what our package includes:
- Paid Time Off: Enjoy a generous package, featuring 3 weeks of vacation time, 40 hours of sick leave, 10 holidays, and 1 floating holiday. Plus, enjoy the PTO Free Days during the extended holiday break from Christmas to New Year’s Day.
- Medical/Dental/Vision: Access a range of contributory medical, dental, and vision plans from your start date, with no waiting period for new hires. Benefit from a substantial 65% employer contribution towards both individual and family medical and dental insurance plans.
- Life/Disability: Rest easy with our 100% employer-paid Life and AD&D plan, as well as Short-term and Long-term Disability coverage.
- Flexible Spending Accounts (FSA): Choose from Health FSA and Dependent Care FSA options.
- 401(k) Retirement Plan: Plan for your future with our up to 4% employer match on the 401(k) retirement plan.
- Additional Benefits: Explore other offerings, including the Employee Assistance Program (EAP), Worker's Compensation, and more.